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Haemodialysis Patients' Experiences on Complementary and Alternative Therapies: A Qualitative Study

Yıl 2024, Cilt: 15 Sayı: 1, 117 - 131, 22.04.2024

Hatice Ceylan Şefika Tuğba Yangöz

https://doi.org/10.22312/sdusbed.1451697

Öz

Background: The term complementary and alternative therapies refers to a broad range of medical and healthcare procedures that are outside the purview of traditional medicine. Despite gaps in the scientific evidence to support its use and difficulties in regulating and integrating it into traditional healthcare procedures, the use of complementary and alternative therapies is constantly rising.
Aim: This study aims to explore the experiences of complementary and alternative therapies among haemodialysis patients.
Material and Methods: The study was carried out by adopting the qualitative descriptive research method. Semistructured qualitative interviews, with 17 haemodialysis patients, were analyzed with qualitative content analysis. Data saturation was reached during interviews, and audio recordings were verbatim transcribed. Both researchers independently identified key topics, which were subsequently discussed and evaluated simultaneously.
Results: We identified 4 overarching main themes in this setting: (1) Seeking Control over Health (to have control over their health status); (2) Relief from negative symptoms (to get rid of the negative symptoms they experience; (3) Hope (in the hope of feeling healthy again); and (4) Fear (in which they are afraid to tell health professionals and are afraid of not receiving support).
Conclusion: This study showed that haemodialysis patients seek complementary and alternative therapies because of having control over their health, relief from negative symptoms, hope to feel healthy again, and fear of telling health professionals and receiving support. It is recommended that health professionals should provide information about the safety and possible side effects of these therapies and practice patient-centered treatment through active communication during the treatment process.

Anahtar Kelimeler

complementary therapies qualitative research renal dialysis

Kaynakça

  • [1] Arjuna Rao AS, Phaneendra D, Pavani C, Soundararajan P, Rani NV, Thennarasu P, Kannan G. 2016. Usage of complementary and alternative medicine among patients with chronic kidney disease on maintenance haemodialysis. Journal of Pharmacy Bioallied Sciences. 8:52‐7.
  • [2] Büyükbayram Z and Aksoy M. 2021. Integrative Methods Used for Symptom Management of Hemodialysis Patients. Journal of Nephrology Nursing. 16 (1); 30-40.
  • [3] Erdoğan Z, Atik DÖ, Çınar S. 2014. Complementary and Alternative Medicine Methods in Chronic Renal Failure. Archives Medical Review Journal, 23(4): 773-790.
  • [4] Mentink MD, Verbeek D, Noordman J, Timmer-Bonte A, Rosenstiel IV, Dulmen SV. 2023. The Effects of Complementary Therapies on Patient-Reported Outcomes: An Overview of Recent Systematic Reviews in Oncology. Cancers.15(18): 4513-4513.
  • [5] Rezaiee O, Shahgholian N, Shahidi S. 2016. Assessment of haemodialysis adequacy and its relationship with individual and personal factors. iranian journal of nursing and midwifery research, 21(6): 577-577.
  • [6] Tangkiatkumjai M, Boardman H, Walker DM. 2020. Potential factors that influence usage of complementary and alternative medicine worldwide: a systematic review. BMC Complement Med Ther, 20(1): 363.
  • [7] Erdoğan Z, Çınar S, Şimşek S. 2013. The use of complementary medicine methods in haemodialysis patients and its relationship with hopelessness level. Spatula DD, 3:107-12.
  • [8] Kelak JA, Cheah WL, Safii R. 2018. Patient's Decision to Disclose the Use of Traditional and Complementary Medicine to Medical Doctor: A Descriptive Phenomenology Study. Evid Based Complement Alternat Med,14: 4735234.
  • [9] Shalgouny M, Bertz-Lepel J, Fischer v. Weikersthal, L. Herbin J, et al. 2023. Introducing a standardized assessment of patients’ interest in and usage of CAM in routine cancer care: chances and risks from patients’ and physicians’ point of view. J Cancer Res Clin Oncol,149: 16575–16587.
  • [10] Lincoln YS, Guba EG.1985. Naturalistic Inquiry. Beverly Hills, CA: Sage.
  • [11] Hennink MM, Kaiser BN, Marconi VC. 2017. Code saturation versus meaning saturation: how many interviews are enough? Qual Health Res, 27(4): 591–608.
  • [12] Johnson JL, Adkins D, Chauvin S. 2020. A review of the quality indicators of rigor in qualitative research. Am J Pharm Educ, 84(1): 7120.
  • [13] Tong A, Sainsbury P, Craig J. 2007. Consolidated criteria for reporting qualitative research (Coreq): a 32‐item checklist for interviews and focus groups. Int J Qual Health Care, 19(6): 349–357.
  • [14] Yildirim A, Simsek H. 2011. Qualitative Research Methods in Social Sciences. 9th Edition. Ankara: Seçkin Publishing.
  • [15] Creswell JW. 2020. Qualitative research methods, qualitative research according to five approaches and research design (Bütün M, Demir SB.) 3. Edition. Siyasal Bookstore.
  • [16] Savcı A, Karacabay K. 2013. Investigation of Nursing Students' Views on Reflective Thinking Experiences in Clinic: “Journey to Ourselves” (Qualitative Study). J Basic Clin Health Sci, 7: 30-38.
  • [17] Krefting L. 1991. Rigor in qualitative research: The assessment of trustworthiness. American Journal of Occupational Therapy. 45, 214-222.
  • [18] Birdee GS, Phillips RS, Brown RS. 2013. Use of Complementary and Alternative Medicine among Patients with End-Stage Renal Disease. Evidence-based Complementary and Alternative Medicine. 1-6.
  • [19] Warren N, Canaway R, Unantenne N, Manderson LH. 2012. Taking control: Complementary and alternative medicine in diabetes and cardiovascular disease management. Health, 17(4): 323-339.
  • [20] Molina-Mula J, Gallo-Estrada J. 2020. Impact of Nurse-Patient Relationship on Quality of Care and Patient Autonomy in Decision-Making. Int J Environ Res Public Health. 29;17(3):835. doi: 10.3390/ijerph17030835.
  • [21] Wang R, Tang C, Chen X, Zhu C, Feng W, Li P, Lu C. 2016. Poor sleep and reduced quality of life were associated with symptom distress in patients receiving maintenance haemodialysis. Health and Quality of Life Outcomes, 14(1).
  • [22] Tong A, Sainsbury P, Chadban SJ, Walker RG, Harris DC, Carter SM, Hall B, Hawley CM, Craig JC. 2009. Patients' Experiences and Perspectives of Living With CKD. American Journal of Kidney Diseases. 53(4): 689-700.
  • [23] Lin V, Canaway R, Carter BJ. 2014. Interface, interaction, and integration: how people with chronic disease in Australia manage CAM and conventional medical services. Health Expectations, 18(6): 2651-2665.
  • [24] Kim S, Lee HZ. 2023. The Lived Self-Care Experiences of Patients Undergoing Long-Term Haemodialysis: A Phenomenological Study. Int J Environ Res Public Health, 7;20(6):4690. doi: 10.3390/ijerph20064690.
  • [25] Xhulia D, Gerta J, Dajana Z, Κoutelekos I, Vasilopoulou C, Skopelitou M, Polikandrioti M. 2015. Needs of Haemodialysis Patients and Factors Affecting Them. Global Journal of Health Science, 8(6): 109-109.
  • [26] Satija A, Bhatnagar S. 2017. Complementary therapies for symptom management in cancer patients. Indian Journal of Palliative Care. 23(4): 468-468.
  • [27] Weeks L, Balneaves LG, Paterson C, Verhoef MJ. 2014. Decision-making about complementary and alternative medicine by cancer patients: an integrative literature review. Open Med, 8(2): e54-66.
  • [28] Liu R, Chang A, Reddy S, Hecht FM, Chao MT. 2016. Improving Patient-Centered Care: A Cross-Sectional Survey of Prior Use and Interest in Complementary and Integrative Health Approaches Among Hospitalized Oncology Patients. Journal of Alternative and Complementary Medicine, 22(2): 160-165.
  • [29] Chatterjee A. 2023. Evaluating the barriers to the utilization of complementary and alternative medicine (CAM) in the United States: An exploratory study. Advances in Integrative Medicine, 10:167-171 doi:10.1016/j.aimed.2023.10.002
  • [30] Gannotta RJ, Malik S, Chan AY, Urgun K, Hsu F, Vadera S. 2018. Integrative Medicine as a Vital Component of Patient Care. Cureus, 4:10(8): e3098.

Hemodiyaliz Hastalarının Tamamlayıcı ve Alternatif Terapiler Konusunda Deneyimleri: Kalitatif Bir Çalışma

Yıl 2024, Cilt: 15 Sayı: 1, 117 - 131, 22.04.2024

Hatice Ceylan Şefika Tuğba Yangöz

https://doi.org/10.22312/sdusbed.1451697

Öz

Giriş: Tamamlayıcı ve alternatif terapiler, geleneksel tıbbın kapsamı dışında kalan geniş bir tıbbi ve sağlık prosedürleri yelpazesini ifade etmektedir. Kullanımını destekleyen bilimsel kanıtlardaki eksikliklere ve geleneksel sağlık prosedürlerine entegre edilmesi ve düzenlenmesindeki zorluklara rağmen, tamamlayıcı ve alternatif terapilerin kullanımı sürekli artmaktadır. Tamamlayıcı ve alternatif terapiler hakkındaki görüşler bu açıdan önem kazanmaktadır.
Amaç: Bu çalışmanın amacı, hemodiyaliz tedavisi alan hastaların tamamlayıcı ve alternatif terapiler konusundaki deneyimlerini araştırmaktır.
Gereç ve Yöntem: Çalışma nitel tanımlayıcı araştırma yöntemi benimsenerek gerçekleştirilmiştir. Yarı yapılandırılmış nitel görüşmeler, 17 hemodiyaliz hastası ile yapılmış ve nitel içerik analizi ile analiz edilmiştir.
Bulgular: Bu çalışmada 4 ana tema belirledik: (1) Sağlık Üzerinde Kontrol Arayışı (kendi sağlık durumları üzerinde kontrol sahibi olmak için); (2) Olumsuz semptomlardan kurtulma (yaşadıkları olumsuz belirtilerden kurtulmak için); (3) Umut (tekrar sağlıklı hissetme umuduyla); ve (4) Korku (sağlık çalışanlarına söylemekten korktukları ve destek alamamaktan çekinmeleri).
Sonuç: Bu çalışma, hemodiyaliz hastalarının sağlıkları üzerinde kontrol sahibi olma, olumsuz semptomlardan kurtulma, yeniden sağlıklı hissetme umudu ve sağlık profesyonellerine söyleme ve destek alma korkusu nedeniyle tamamlayıcı ve alternatif tedavilere başvurduklarını göstermiştir. Bu çalışma, hemodiyaliz hastalarının tamamlayıcı ve alternatif tedavilerle ilgili deneyimlerinin derinlemesine anlaşılmasını sağlamıştır. Sağlık profesyonellerinin bu tedavilerin güvenliği ve olası yan etkileri hakkında bilgi vermesi ve tedavi sürecinde aktif iletişim yoluyla hasta merkezli tedavi uygulaması önerilmektedir.
.

Anahtar Kelimeler

nitel araştırma renal diyaliz tamamlayıcı terapiler

Etik Beyan

This study was conducted according to the Declaration of Helsinki. The ethical approval was obtained from University's Clinical Research Ethics Committee (Date: 03.05.2023, No: 2023/273). The participants were given information about the aim and procedure of the study on the first page of the online survey before starting the study. Informed consent was obtained from all participants.

Destekleyen Kurum

This research did not receive any specific grant from funding agencies in the public, commercial, or not-for-profit sectors.

Teşekkür

We would like to thank all the participants who made this study possible.

Kaynakça

  • [1] Arjuna Rao AS, Phaneendra D, Pavani C, Soundararajan P, Rani NV, Thennarasu P, Kannan G. 2016. Usage of complementary and alternative medicine among patients with chronic kidney disease on maintenance haemodialysis. Journal of Pharmacy Bioallied Sciences. 8:52‐7.
  • [2] Büyükbayram Z and Aksoy M. 2021. Integrative Methods Used for Symptom Management of Hemodialysis Patients. Journal of Nephrology Nursing. 16 (1); 30-40.
  • [3] Erdoğan Z, Atik DÖ, Çınar S. 2014. Complementary and Alternative Medicine Methods in Chronic Renal Failure. Archives Medical Review Journal, 23(4): 773-790.
  • [4] Mentink MD, Verbeek D, Noordman J, Timmer-Bonte A, Rosenstiel IV, Dulmen SV. 2023. The Effects of Complementary Therapies on Patient-Reported Outcomes: An Overview of Recent Systematic Reviews in Oncology. Cancers.15(18): 4513-4513.
  • [5] Rezaiee O, Shahgholian N, Shahidi S. 2016. Assessment of haemodialysis adequacy and its relationship with individual and personal factors. iranian journal of nursing and midwifery research, 21(6): 577-577.
  • [6] Tangkiatkumjai M, Boardman H, Walker DM. 2020. Potential factors that influence usage of complementary and alternative medicine worldwide: a systematic review. BMC Complement Med Ther, 20(1): 363.
  • [7] Erdoğan Z, Çınar S, Şimşek S. 2013. The use of complementary medicine methods in haemodialysis patients and its relationship with hopelessness level. Spatula DD, 3:107-12.
  • [8] Kelak JA, Cheah WL, Safii R. 2018. Patient's Decision to Disclose the Use of Traditional and Complementary Medicine to Medical Doctor: A Descriptive Phenomenology Study. Evid Based Complement Alternat Med,14: 4735234.
  • [9] Shalgouny M, Bertz-Lepel J, Fischer v. Weikersthal, L. Herbin J, et al. 2023. Introducing a standardized assessment of patients’ interest in and usage of CAM in routine cancer care: chances and risks from patients’ and physicians’ point of view. J Cancer Res Clin Oncol,149: 16575–16587.
  • [10] Lincoln YS, Guba EG.1985. Naturalistic Inquiry. Beverly Hills, CA: Sage.
  • [11] Hennink MM, Kaiser BN, Marconi VC. 2017. Code saturation versus meaning saturation: how many interviews are enough? Qual Health Res, 27(4): 591–608.
  • [12] Johnson JL, Adkins D, Chauvin S. 2020. A review of the quality indicators of rigor in qualitative research. Am J Pharm Educ, 84(1): 7120.
  • [13] Tong A, Sainsbury P, Craig J. 2007. Consolidated criteria for reporting qualitative research (Coreq): a 32‐item checklist for interviews and focus groups. Int J Qual Health Care, 19(6): 349–357.
  • [14] Yildirim A, Simsek H. 2011. Qualitative Research Methods in Social Sciences. 9th Edition. Ankara: Seçkin Publishing.
  • [15] Creswell JW. 2020. Qualitative research methods, qualitative research according to five approaches and research design (Bütün M, Demir SB.) 3. Edition. Siyasal Bookstore.
  • [16] Savcı A, Karacabay K. 2013. Investigation of Nursing Students' Views on Reflective Thinking Experiences in Clinic: “Journey to Ourselves” (Qualitative Study). J Basic Clin Health Sci, 7: 30-38.
  • [17] Krefting L. 1991. Rigor in qualitative research: The assessment of trustworthiness. American Journal of Occupational Therapy. 45, 214-222.
  • [18] Birdee GS, Phillips RS, Brown RS. 2013. Use of Complementary and Alternative Medicine among Patients with End-Stage Renal Disease. Evidence-based Complementary and Alternative Medicine. 1-6.
  • [19] Warren N, Canaway R, Unantenne N, Manderson LH. 2012. Taking control: Complementary and alternative medicine in diabetes and cardiovascular disease management. Health, 17(4): 323-339.
  • [20] Molina-Mula J, Gallo-Estrada J. 2020. Impact of Nurse-Patient Relationship on Quality of Care and Patient Autonomy in Decision-Making. Int J Environ Res Public Health. 29;17(3):835. doi: 10.3390/ijerph17030835.
  • [21] Wang R, Tang C, Chen X, Zhu C, Feng W, Li P, Lu C. 2016. Poor sleep and reduced quality of life were associated with symptom distress in patients receiving maintenance haemodialysis. Health and Quality of Life Outcomes, 14(1).
  • [22] Tong A, Sainsbury P, Chadban SJ, Walker RG, Harris DC, Carter SM, Hall B, Hawley CM, Craig JC. 2009. Patients' Experiences and Perspectives of Living With CKD. American Journal of Kidney Diseases. 53(4): 689-700.
  • [23] Lin V, Canaway R, Carter BJ. 2014. Interface, interaction, and integration: how people with chronic disease in Australia manage CAM and conventional medical services. Health Expectations, 18(6): 2651-2665.
  • [24] Kim S, Lee HZ. 2023. The Lived Self-Care Experiences of Patients Undergoing Long-Term Haemodialysis: A Phenomenological Study. Int J Environ Res Public Health, 7;20(6):4690. doi: 10.3390/ijerph20064690.
  • [25] Xhulia D, Gerta J, Dajana Z, Κoutelekos I, Vasilopoulou C, Skopelitou M, Polikandrioti M. 2015. Needs of Haemodialysis Patients and Factors Affecting Them. Global Journal of Health Science, 8(6): 109-109.
  • [26] Satija A, Bhatnagar S. 2017. Complementary therapies for symptom management in cancer patients. Indian Journal of Palliative Care. 23(4): 468-468.
  • [27] Weeks L, Balneaves LG, Paterson C, Verhoef MJ. 2014. Decision-making about complementary and alternative medicine by cancer patients: an integrative literature review. Open Med, 8(2): e54-66.
  • [28] Liu R, Chang A, Reddy S, Hecht FM, Chao MT. 2016. Improving Patient-Centered Care: A Cross-Sectional Survey of Prior Use and Interest in Complementary and Integrative Health Approaches Among Hospitalized Oncology Patients. Journal of Alternative and Complementary Medicine, 22(2): 160-165.
  • [29] Chatterjee A. 2023. Evaluating the barriers to the utilization of complementary and alternative medicine (CAM) in the United States: An exploratory study. Advances in Integrative Medicine, 10:167-171 doi:10.1016/j.aimed.2023.10.002
  • [30] Gannotta RJ, Malik S, Chan AY, Urgun K, Hsu F, Vadera S. 2018. Integrative Medicine as a Vital Component of Patient Care. Cureus, 4:10(8): e3098.
Toplam 30 adet kaynakça vardır.

Ayrıntılar

Birincil Dil İngilizce
Konular Dahili Hastalıklar Hemşireliği
Bölüm Araştırma Makaleleri
Yazarlar

Hatice Ceylan 0000-0001-6423-6010

Şefika Tuğba Yangöz 0000-0001-9711-2620

Yayımlanma Tarihi 22 Nisan 2024
Gönderilme Tarihi 12 Mart 2024
Kabul Tarihi 5 Nisan 2024
Yayımlandığı Sayı Yıl 2024 Cilt: 15 Sayı: 1

Kaynak Göster

Vancouver Ceylan H, Yangöz ŞT. Haemodialysis Patients’ Experiences on Complementary and Alternative Therapies: A Qualitative Study. Süleyman Demirel Üniversitesi Sağlık Bilimleri Dergisi. 2024;15(1):117-31.
 Kapak Resmi İndir

SDÜ Sağlık Bilimleri Dergisi, makalenin gönderilmesi ve yayınlanması dahil olmak üzere hiçbir aşamada herhangi bir ücret talep etmemektedir. Dergimiz, bilimsel araştırmaları okuyucuya ücretsiz sunmanın bilginin küresel paylaşımını artıracağı ilkesini benimseyerek, içeriğine anında açık erişim sağlamaktadır.